PUOWG Open Meeting Minutes

Saturday September 10, 2016 – 6p to 7:30p

Location: Executive Room

Attendance: 18 members


  1. Introduction (by Ferd) – Started Late (6:30p)
    • Introduction, Welcome
  2. Case Presentations (discussion of each immediately after each presentation) - Moderator – Ferd Ferrer
    1. “Bladder recurrence of clear cell sarcoma of the kidney 7 years after initial presentation.” - Jack Weaver
    2. “One year-old male with Bilateral Renal Cell Carcinoma and Tuberous Sclerosis Complex.” - Chip Roth
    3. “Large cystic renal lesion in a 15 year old girl.” - Amanda Saltzman
    4. “Wilms tumor with metastasis to the vagina: a case report.” - Bradley Morganstern

REMINDER – Submit these to Gold Journal by 12/1/16 for Special Edition of Case Reports from PUOWG Session

AWARD FOR BEST PRESENTATION – Chip Roth presenting “One year-old male with Bilateral Renal Cell Carcinoma and Tuberous Sclerosis Complex.”

Business Meeting

  1. Updates from SPU Coordinating Council (Ferd)
    • Green light to do session (1.5hr) at AUA/SPU 2017 on RMS Local Control (see below)
  2. Updates from COG Fall Meeting
    • GCT – Nick
      • Two new studies hopefully open 2018 timeline (Low Risk and Intermediate Risk Studies)
    • Renal – Nick
      • New studies should open 2017 on:
        • Expanded Very Low Risk Wilms Cohort
        • Standard Risk
        • High Risk/Relapse
        • RCC
    • RMS – Jon Routh
      • New intermediate risk RMS study just opened
  3. Discussion of Current Working Group studies
    • Current Work Force Survey Study published at Journal of Urology
    • ABU Case Logs Study – presented here at Fall Congress
    • Preoperative Risk Factors in Loco-Regional Wilms Tumor
      • Enrollment with 8 centers – data being collected
    • Testicular Microlithiasis Survey on Management:
      • Survey closed, data being analyzed
    • Stone study in patients on chemotherapy
      • Kristina Suson is the lead person on this, please contact if interested
  4. New Study idea
    • Cystic renal mass study
      • Study Committee (volunteers): Patricio Gargollo, Candace Granberg, Paul Bowlin and Anthony Schaeffer
        • To develop idea and present to Exec Committee by time of Spring 2017 meeting.
          • Discussion about direction of study (COG vs. PUOWG)
        • Final study schema to be determined by Study Committee
  5. We will be due for time at the AUA/SPU 2017 for Education Session (Ferd, 5 min)
    • Point-Counter Point on Organ Preservation in Pelvic RMS
      • Ferd to Moderate
        • Individual presentations as below
        • 2-3 cases to discuss among panelists
      • Peds Oncologist (Boston Children’s) – Jon Routh and Ferd to coordinate
      • Peds Urologist (Jon Routh – COG RMS Committee Member)
      • Peds Rad Onc – Consider inviting Torrin Yock to discuss Proton Beam XRT
      • Need an advocate for Traditional RT or even Brachytherapy
  6. Logo for PUOWG – consideration of a caricature crab overlaid an anatomic outline of GU System
    • Hope to have a few versions to circulate and vote on in the coming months
  7. Concluded meeting at 7:45p