PUOWG Open Meeting Minutes
Saturday September 10, 2016 – 6p to 7:30p
Location: Executive Room
Attendance: 18 members
Minutes
- Introduction (by Ferd) – Started Late (6:30p)
- Introduction, Welcome
- Case Presentations (discussion of each immediately after each presentation) - Moderator – Ferd Ferrer
- “Bladder recurrence of clear cell sarcoma of the kidney 7 years after initial presentation.” - Jack Weaver
- “One year-old male with Bilateral Renal Cell Carcinoma and Tuberous Sclerosis Complex.” - Chip Roth
- “Large cystic renal lesion in a 15 year old girl.” - Amanda Saltzman
- “Wilms tumor with metastasis to the vagina: a case report.” - Bradley Morganstern
REMINDER – Submit these to Gold Journal by 12/1/16 for Special Edition of Case Reports from PUOWG Session
AWARD FOR BEST PRESENTATION – Chip Roth presenting “One year-old male with Bilateral Renal Cell Carcinoma and Tuberous Sclerosis Complex.”
Business Meeting
- Updates from SPU Coordinating Council (Ferd)
- Green light to do session (1.5hr) at AUA/SPU 2017 on RMS Local Control (see below)
- Updates from COG Fall Meeting
- GCT – Nick
- Two new studies hopefully open 2018 timeline (Low Risk and Intermediate Risk Studies)
- Renal – Nick
- New studies should open 2017 on:
- Expanded Very Low Risk Wilms Cohort
- Standard Risk
- High Risk/Relapse
- RCC
- New studies should open 2017 on:
- RMS – Jon Routh
- New intermediate risk RMS study just opened
- GCT – Nick
- Discussion of Current Working Group studies
- Current Work Force Survey Study published at Journal of Urology
- ABU Case Logs Study – presented here at Fall Congress
- Preoperative Risk Factors in Loco-Regional Wilms Tumor
- Enrollment with 8 centers – data being collected
- Testicular Microlithiasis Survey on Management:
- Survey closed, data being analyzed
- Stone study in patients on chemotherapy
- Kristina Suson is the lead person on this, please contact if interested
- New Study idea
- Cystic renal mass study
- Study Committee (volunteers): Patricio Gargollo, Candace Granberg, Paul Bowlin and Anthony Schaeffer
- To develop idea and present to Exec Committee by time of Spring 2017 meeting.
- Discussion about direction of study (COG vs. PUOWG)
- Final study schema to be determined by Study Committee
- To develop idea and present to Exec Committee by time of Spring 2017 meeting.
- Study Committee (volunteers): Patricio Gargollo, Candace Granberg, Paul Bowlin and Anthony Schaeffer
- Cystic renal mass study
- We will be due for time at the AUA/SPU 2017 for Education Session (Ferd, 5 min)
- Point-Counter Point on Organ Preservation in Pelvic RMS
- Ferd to Moderate
- Individual presentations as below
- 2-3 cases to discuss among panelists
- Peds Oncologist (Boston Children’s) – Jon Routh and Ferd to coordinate
- Peds Urologist (Jon Routh – COG RMS Committee Member)
- Peds Rad Onc – Consider inviting Torrin Yock to discuss Proton Beam XRT
- Need an advocate for Traditional RT or even Brachytherapy
- Ferd to Moderate
- Point-Counter Point on Organ Preservation in Pelvic RMS
- Logo for PUOWG – consideration of a caricature crab overlaid an anatomic outline of GU System
- Hope to have a few versions to circulate and vote on in the coming months
- Concluded meeting at 7:45p